Frequently Asked Questions
Why should I trust you with my data?
Varient will ensure that the custody of your data is GDPR, UK, HIPAA compliant, as well as follow best practices for sharing it.
But if you’re uncomfortable at any point, you can delete your data anytime.
What value does Varient add in comparison to the registries that I’ve added my data to?
We ask you what works (and what doesn’t) to control the symptoms of your rare disease, and let you know what works for others. We’ll also notify you directly about clinical trials you’re eligible for.
In the future, Varient aims to be integrated with registries directly, saving you the time and effort it takes to keep up with numerous registries.
How long will it take me to sign up? What’s involved?
We know form fatigue is real in the rare warrior world.
Making our user interface friendly was a huge priority. Our signup process takes less than 10 minutes.
All you need is a copy of your genetic report and notes about your medication history.
Will you share anonymous medication ratings and demographic stats for my rare disease with another entity?
Only if they are a foundation, a clinician running a natural history study, or want to develop a treatment/cure for your rare disease.
Your trust is everything.